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MY BRAIN HURTS

My MS Journey

In 2019, I was diagnosed with Multiple Sclerosis. I had spent my entire twenties bouncing around the world, putting any niggling ailments to one side as I took on new challenges and exciting adventures. I was young, so I thought I was relatively invincible. All of the bizarre symptoms like numbness seemed to right themselves eventually. Plus, being sick wasn’t convenient. Five years later, I was finally diagnosed, after seeing a bemused orthopaedic surgeon. Despite having absolutely zero medical background, I had diagnosed myself with a foot problem. I owe my improved health and happiness to him, as so many doctors had passed me aside and I was made to feel like a hypochrondriac. Grieving for my health at a young age (if one is to consider 32 young!) was a strange self-absorption. I was grateful to have been given answers but equally, was terrified about the unknown. You wake up one day carefree and the next minute a conversation with a doctor changes your life forever. Like many people when they are first diagnosed, my initial fears were that I would end up in a wheelchair. This disability trope is typical of how we talk about and perceive disabilities. So many are, like mine, invisible and so little is understood about disability in general. MS manifests itself in vastly different ways depending on the person. Since then, despite knowing that MS is progressive and as of yet, there is no cure, I am less scared of taking opportunities. In this section, I detail my experiences living with MS and all that it entails. Some days it's really annoying but it's not all bad!

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